With International Ataxia Awareness Day around the corner, watch the fourth and final video in this series by Bill Nye (the Ataxia Advocate guy!)

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Bill Nye explains the science behind Ataxia and the crucial role of research in finding new treatments.

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Find out about the 'Darby Glide' as Bill Nye shares details on Ataxia in his family.

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What actually is Ataxia? Find out more from Bill Nye the Ataxia Advocate guy!

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People living with FA can access physiotherapy & occupational therapy services through the Duncan Foundation. Find out more.

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Lend us some muscle for the month of May!

Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2023

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Managing FA can be challenging so Connect FA has created a great resource with suggestions from the FA community. Download a copy at https://www.connectfa.com

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Join us in saying thank you to everyone who contributed to Lend Us Some Muscle 2022!

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FARA NZ’s chairperson, Dianne Boon, recently wrote an article for InTouch magazine. The article includes an update about the work being done by FARA NZ and puts the spotlight on the shiny new FA App (available in App Store & Google Play store)

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fara Australia invites FA patients and families to attend the 2022 FA Patient and Family Information Forum

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Our friends at fara Australia have secured the exclusive screening of The Ataxian through the generous people at Classic and Lido Cinemas. Available online and all proceeds go to FA research.

The award-winning documentary spotlights Kyle Bryant, a man living with the progressive genetic neuromuscular disorder, Friedreich Ataxia, and a team of friends, as they attempt the most gruelling bicycle race in the world, The Race Across America. Watch online now!

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We were privileged to be joined by representatives from University of Auckland’s Neurogenetic Research Clinic at our recent AGM. Take a look at the slides enclosed.

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Flynn Mitchell and his family are taking part in the RideAtaxia Global Challenge and have a goal of raising $15,000 - they’re just about halfway there!

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Can you help researchers test a treatment option for Friedreich Ataxia?

If you have FA and can walk at least 3 meters in one minute, then you may qualify to take part. This is an exciting opportunity to play an important role in potentially game changing research!

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[ONE TO WATCH] FARA US recently hosted a webinar on the FA Treatment Pipeline. The session included updates on therapeutic approaches in the pipeline with Jen Farmer, FARA's Chief Executive Officer; Dr Barbara Tate, Chief Scientific Officer; and Susan Walther, Director of Patient Engagement.

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Lend Us Some Muscle has a come to a close for another year - and what a huge success it’s been! The support from the New Zealand crowd was fantastic. We salute you!

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FA Awareness Day is this Saturday 15th May! You can get involved and raise awareness of FA by getting involved in Lend Us Some Muscle - the global campaign dedicated to finding a cure for FA.

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We’re excited to announce you can get Lend Us Some Muscle T-Shirts this year! Limited numbers, get in quick!

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