May means it’s time to LEND US SOME MUSCLE! Sign up, donate, support, and flex!

Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2024

People living with FA can access physiotherapy & occupational therapy services through the Duncan Foundation. Find out more.

Lend us some muscle for the month of May!

Find out more here: https://nz.lendussomemuscle.com/lend-us-some-muscle-2023

The Clinical Management Guidelines for Friedreich Ataxia have been updated.

Managing FA can be challenging so Connect FA has created a great resource with suggestions from the FA community. Download a copy at https://www.connectfa.com

Join us in saying thank you to everyone who contributed to Lend Us Some Muscle 2022!

FARA NZ’s chairperson, Dianne Boon, recently wrote an article for InTouch magazine. The article includes an update about the work being done by FARA NZ and puts the spotlight on the shiny new FA App (available in App Store & Google Play store)

fara Australia invites FA patients and families to attend the 2022 FA Patient and Family Information Forum

Our friends at fara Australia have secured the exclusive screening of The Ataxian through the generous people at Classic and Lido Cinemas. Available online and all proceeds go to FA research.

The award-winning documentary spotlights Kyle Bryant, a man living with the progressive genetic neuromuscular disorder, Friedreich Ataxia, and a team of friends, as they attempt the most gruelling bicycle race in the world, The Race Across America. Watch online now!

We were privileged to be joined by representatives from University of Auckland’s Neurogenetic Research Clinic at our recent AGM. Take a look at the slides enclosed.