Support & Resources

Diagnosis of Friedreich Ataxia is an extremely challenging time for both the individual and the family.

Here are key support and resources available to help you:

FARA NZ

Support and Advocacy: We advocate for the best care, treatment, and quality of life for New Zealanders with Friedreich Ataxia (FA).

• Research Funding: We raise funds to support research towards a cure for FA.

• Information and Resources: We provide up-to-date information on FA research and the treatment pipeline.

• Membership: We encourage people diagnosed with FA, their families, and friends to become members for support and information.

• Contact: enquiries@fara.org.nz | www.fara.org.nz

Clinical Care:

Neurogenetic Research Clinic (Auckland University): Offers physiotherapy, occupational therapy assessments, and potential participation in FA research trials. For information, contact cbr.nrc@auckland.ac.nz.

Patient Registries:

The New Zealand Neuromuscular Disease Registry (Punaha Io Neurogenetic Research Bank): Register to contribute to research by anonymously sharing your medical data. Contact nznmdregistry@adhb.govt.nz.