Virtual FA Patient & Family Forum

fara Australia recently held their first virtual FA patient and family information forum. They’ve been kind enough to share the recordings of the various sessions throughout the day. These sessions were hosted by some of Australia’s best and brightest FA researchers who had many important updates on FA research.

You can check out the recording by clicking the button below:

The passcode is Bbv2Nl=P (please note it is a little L after the N).

The agenda included:

  • Jen Farmer, CEO, FARA US - Update on current clinical trials

  • Kara Fick, Associate Director – Patient Advocacy, REATA Pharmaceuticals - MOXIe trial update

  • Martin Delatycki, Murdoch Children’s Research Institute - Update of Friedreich Ataxia research at MCRI.

  • Mirella Dottori, University of Wollongong and Christine Cortez-Jugo, University of Melbourne - Establishing the FA neuronal models for screening gene delivery therapies using nanoparticles

  • Adam Vogel, University of Melbourne - SpeechATAX

  • Nellie Georgiou–Karistianis, Turner Institute for Brain and Mental Health - A natural history study to TRACK brain and spinal cord changes in individuals with Friedreich Ataxia (TRACK-FA)

  • Ian Harding, Monash University - Measuring Neuroinflammation in FA

  • Louisa Selvadurai, Monash University - Longitudinal multimodal neuroimaging in FA

  • Seth Masters, Walter and Eliza Hall Institute - Targeting Neuroinflammation in FA

  • Jarmon Lees, St Vincent’s Institute of Medical Research - Investigating the role of myocytes and non-myocytes in the pathogenesis of cardiomyopathy in FA.

Sheridan Jamieson