ACTION REQUIRED! Petition to create NZ Rare Disorder Framework
“No country can claim to have achieved universal healthcare if it has not adequately and equitably met the needs of those with rare diseases.”
- Helen Clark, United Nations
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There are countless challenges for Kiwi’s living with rare disorders like Friedreich Ataxia, and getting the support that you and your whānau need shouldn’t be one of the major challenges we face.
New Zealand does not currently have a framework for rare disorders. Why is this a problem? It means that people living with rare disorders have to fight to access the health care and support that they need.
How can we change this?
Sue Haldane has created a petition to establish a National Rare Disorders Framework. Please sign, and share the petition to support everyone with rare disorders in NZ - including those with Friedreich Ataxia.
It’s time for New Zealand to take rare disorders seriously to ensure equitable health outcomes for everyone. Rare is part of our communities and deserves a fair go.
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